For Patients and Families
Families play an essential role in our research. We are committed to integrating the perspectives of families into every stage of the research process, from study design to outcome dissemination. By actively engaging families, we aim to ensure that our research addresses priorities that are meaningful to patients and caregivers and promotes family-centered outcomes.
Please explore the resources below to learn more about family involvement in research, participation opportunities, and ongoing efforts to improve care for critically ill children.
Should My Child Join a Study?
As a parent or guardian, the decision to allow your child to participate in a clinical study may be a difficult one.
Visit Resource →Children and Clinical Studies
The following resources provide information on why clinical studies are important, how children might benefit from participation, and what you should think about before, during, and after joining a study.
Visit Resource →CPCCRN Family Network Collaborative
In order for our investigators to most effectively conduct such research, it is necessary to ask for the input of families whose children have experienced critical illness and/or injury or who have been involved in research, particularly research focused on critical illness.
Visit Resource →SHIPSS Study: For Patients and Families
Learn more about the SHIPSS study and stay informed on its progress and findings.
Visit Resource →